Your angeogram was today, Dr Oslizlok performed your procedure. You've been fasting since 3am and you were in such great form even tho your such a lil star, say you were well full from your bottle and spoonfeed at 2.30am. We went down for your procedure at 10.30am it was supposed to be 9am, both yer dad and i brought you into the cath lab, they usually only let one in but it was nice that we both got to take you in.
Your last cath took bout 2hrs recovery and all, they told us u should be back withing 1 1/2 hrs, you were 3hrs gone we were a nervous wreck and all the texts and calls from hime didn't help even tho we knew they all meant well. We were not informed why it was taking so long, eventually i got up and went to ask. You were being kept in recovery longer because your saturations were getting it hard to increase. They went in from both side, your right side didn't work initally so they had to go in from the left. You were bruised but in ok form, bit groggy but this didn't stop you taking your bottle.
Your dad and i stayed on level 2 parent accomodation again 2nite so we'd be close should you need us. Your big sister abigail phoned to say she missed ya loads but we'd hoped to get home tomorrow. Dr Oslislok came later on the nite with great news. He told us the lung arteries seemed to have grown from 2mm when born to 5mm now and not far off the norm. This would make options for surgery much better, knew you were a little fighter buddy, he did also notice your kidney seemed enlarged and recommended a kidney scan 2moro.
10th November '09
Today the nurses were on stike from cutbacks from the government to the public service, so there was only skeleton staff on. We'd hoped your kidney scan would be today but unfortunately it didn't go ahead, hoped to see Dr Mc today but that didn't hapen either. One up on 2day was you were back to your old self, and your voice was back to norm.
11th November '09
You had your kidney scan this afternoon, looks like your kidney stent has moved. Three people came to look at your scan and then they sent you for an xray. None of Dr Quinn's medical team were around to see you 2day which was ridicilous i was so mad. Dr McMahon came and we had a good chat about questions we had re your surgery and condition. Dr McMahon is very honest and he tells us exactly how it is which is great, he's so nice and we couldn't have asked for a better cardiologist for you. I asked him what are your chances of just dying suddenly coz a baby died recently at home, he said that the way the anatomy of your heart was you would not be a candidate for your heart to just suddenly stop, if you were in heart failure it would be gradual rather that sudden. He asked us to stay another night so he could consult with us after the cardiac connference in the morning. Myself and yer dad went home for a few hrs 2day to see abigail and whilst we were gone Anne a really nice nurse took great care of you and the nurse came to give you your 2nd RSV injection. Hated leaving you but abigail needed us too, we were back up within a few hrs and got to cuddle you after yer ordeal of the injection, Natasha was around too so she was there when u were getting your needle.
12t November '09
Dr Mc was straight u to us after the conference and began to discuss your surgery plan... SHOCK
We expected your surgery to be 5-6hrs maybe but Dr Mc confirmed it'll be 9hrs long and very complex. The survival rate is 70-80% ie. 1 in 4 don't survive. He told us to make sure everyone was aware how serious the surgery will be and what chances will be. It was great to be told all the facts but boy were we brought back to reality with a big bang. Its so hard for us to see you sick when yer thriving and look so healthy. Dr Mc says you won't be running marathons or playing inter county football but you will lead a normal enough life and they're will be loads you will be able to do. Hearing this was so hard especially for your dad. Every dad loves who's big into sport loves to imagine their son out playing soccer, football, rugby, hurling etc. and follow in Dad's footsteps. But please god when it comes to then things will have changed and you'll prove them all wrong and i've lots of hope and faith that you will. Your had all your checks done and then you were discharged, happy days xox
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