30th November '09
Today was a sad day, you got upset and shed your 1st tear, another milestone but a kinda sad one!
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Santa & His Big Helper
This blog was set up to share Billy's journey from 7th July '09 until he flew off to the angels playground on 21st Dec '09. Miss u loads lil man luv mam, dad & abigail xox
About Me
- BM
- I was born with Digeorge Syndrome - this is a condition with many different features ranging from mild to severe. You can have just one, a few or quite a few features. I was born with a very complex heart condition which included Pulmonary Atresia, VSD & MAPCA's along with Kidney Abnormalities.
Links
Blog Archive
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2010
(60)
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February
(35)
- Another trip to see Santa!
- Funny Story
- A&E followed by Hospital Stay!
- Kyle's Christening & Lullymore
- The Home Straight..
- Your 1st Tear ;-(
- 1st Visit to Santa
- Hospital Stay in Crumlin!
- Kidney Stint Replacement..
- You laughed out loud ;-)
- Your 1st Cynotic Spell
- Big Big Scary Day...
- App with Dr Quinn
- Few unsettled nights!
- Hospital stay in Crumlin
- Parachute Club & Back to Hospital
- GP Visit
- Procedure Cancelled ;-(
- Strawberry Baby xox
- Halloween
- Yet another b'day party...
- Clonfert Day
- RSV 1 of 5 aghhhhhh
- Development Check & another b'day party
- Endocrine OPD
- + Off to Knock +
- Another b'day party
- 1st Movie in Cinema
- Shhhhhh - Your 1st taste of spoonfeed ;-)
- Stephen's Leaving Party
- Photo Shoot 4 Model Baby ;-)
- Doc visit :-(
- 1st Private App
- Off to the hospital we go again!!!
- Your 1st Immunisations... aghhh
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February
(35)
Followers
Christmas '09
Santa & His Big Helper
You know yer a heart mam when...
.....the predictive text on your phone sails through "echocardiogram", "cardiovascular", "catheter", "pulmonary atresia", "mapca's" etc....
.....you're happy when your babes gains 50grams
....sats of 80??? Sheesh, he's pink!!!
.... you are on first name basis with your local pharmacist
.... You keep getting asked if you are a nurse when explaining your child's medical history
.... You can understand and work a sats monitor better than most trained nurses can
....You run through the whole of your childs medical history from memory cos you've done it so many times before
....you think there is something wrong if your child doesn't have a strange, bluish moustache on his/her top lip, or have cold hands and/or feet
....You have more syringes than teaspoons in the kitchen drawer
... the other children in your family don't bat an eyelid when another child is sick during dinner time because they are so used to it at home
.... You have cried more since having your heart child than you have in the whole of your life
....you realise the important things in life.
....you are on first name terms with many of your childs doctors.
...when you look at your special little heart child, you are the proudest mummy in the whole wide world, no words can explain that feeling.
...When explaining your childs condition to friends you get the reply he will get better though wont he/she
...when you seriously contemplate liquidising doughnuts and syringing them into your 8 week old baby in an attempt to get them to gain weight
...Because if you hear the words "yeh but its amazing what they can do nowadays isnt it, they can fix it cant they?" again you are going to scream
...when seeing your child acheive ordinary milestones makes you cry with happiness.
...The list of phone numbers on your mobile phone contain, Cardiac liason nurse, hospital ward, drs, chemist.
...When you get annoyed if other non heart kids parents compare their children and their development with your child(even if its something really insignificant to them)
...When it feels like everyone you meet know, someones auntie/cousin/hairdresser etc, who's "got a hole in their heart and their fine now"!!
...When everyone says prayers will fix everything!!
...Because there are times when you sit by their bed, watching them sleep with tears streaming down your face not knowing what the future holds.
.....you're happy when your babes gains 50grams
....sats of 80??? Sheesh, he's pink!!!
.... you are on first name basis with your local pharmacist
.... You keep getting asked if you are a nurse when explaining your child's medical history
.... You can understand and work a sats monitor better than most trained nurses can
....You run through the whole of your childs medical history from memory cos you've done it so many times before
....you think there is something wrong if your child doesn't have a strange, bluish moustache on his/her top lip, or have cold hands and/or feet
....You have more syringes than teaspoons in the kitchen drawer
... the other children in your family don't bat an eyelid when another child is sick during dinner time because they are so used to it at home
.... You have cried more since having your heart child than you have in the whole of your life
....you realise the important things in life.
....you are on first name terms with many of your childs doctors.
...when you look at your special little heart child, you are the proudest mummy in the whole wide world, no words can explain that feeling.
...When explaining your childs condition to friends you get the reply he will get better though wont he/she
...when you seriously contemplate liquidising doughnuts and syringing them into your 8 week old baby in an attempt to get them to gain weight
...Because if you hear the words "yeh but its amazing what they can do nowadays isnt it, they can fix it cant they?" again you are going to scream
...when seeing your child acheive ordinary milestones makes you cry with happiness.
...The list of phone numbers on your mobile phone contain, Cardiac liason nurse, hospital ward, drs, chemist.
...When you get annoyed if other non heart kids parents compare their children and their development with your child(even if its something really insignificant to them)
...When it feels like everyone you meet know, someones auntie/cousin/hairdresser etc, who's "got a hole in their heart and their fine now"!!
...When everyone says prayers will fix everything!!
...Because there are times when you sit by their bed, watching them sleep with tears streaming down your face not knowing what the future holds.
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