Sunday, May 9, 2010

Christmas Day

25th December '09


It was horrible waking up without you here christmas morning, just horrible. All you presents lay in your room, untouched, waiting to be opened... so unfair.

Abigail gave us a reason to smile this morning, she was so excited and overwhealmed by all the gifts she had to open, more excited after each opening!!! Behind our smiles tho our hearts were aching, aching for the want of having you here, holding you as your eyes lit up watching abigail getting over excited. Sitting you into you beep beep santa brought, or lying you on yer play mat and watching you play with all the activites it had for you, another gift from santa.

Rudolph was so messy, he left reindeer food all down the stairs, all over the sitting room and lefts the packaging out in the front lawn, abigail was giving out about how messy he'd been, santa ate his cookies, had milk and beer... not a good mixture santa!

Dinner went ok, we went to visit you before dinner, just your dad and I as roads were very slippy. After dinner we went up and opened all you lovey gifts from all your friends and family. We laid them out in your room for all to see, it was heartbreaking seeing all your clothes and toys... never to be used or worn by you, so very unfair!

Our 1st day of many without you in our lives... how was it??? Well right now i just don't know how it was coz i'm numb without you, still in a state of shock, in a little denial and utterly heartbroken...

Farewell Lil Man... til we see you again...

24th December '09

Christmas eve is my most favourite day of the year, even more so than xmas day, i just love the excitement, hussle and bustle and all the preparation for one big day! Xmas Eve will never be quite the same again, maybe in time i will get back my love for it again, but i'm not expecting this anytime soon.

I hate goodbyes and in your case it's not goodbye chic coz u'll always be with us no matter what, we may not be able to hold you in our arms and physically feel you but we will feel you in spirit and in our hearts coz no matter what you will always be a big part of our hearts no matter how broken it may seem now.

When you were born we always knew there would be risks of you dying, but that risk we didn't expect until heart surgery considering how well you were doing. Never for a minute did i think we would be met with this day so soon. We prayed everyday that this would something that would not darken our door. Teresa your godmother did my hair 2day, she's been so amazing this past few days, a true godsend. She is so proud to be chose to be your godmother. We gave Teresa and Paul their xmas presents from you today. Paul & Trish have also been amazing this last few days. Our whole family have been a backbone of support not just the last few days but since you were born they've been fantastic.

More ppl came to visit you today, you did more in 5 1/2 months and met more ppl that any other child your age, you sure did get places chic, a little charmer you've been. We took you downstairs for prayers , the coffin was brough in, time was getting close. The room cleared, this was it the moment since monday that we'd been dreading. Your grandad Ollie (in good intentions) didn't give us much time to linger together. It was like 2 magnit forces pushing against each other as i walked you to the coffin. It broke our hearts to lay you into that coffin, your new bed. I placed you down and with you was your snuggle blankie comforter, rosery beads and elmo from your grandad kelly, pack of milybar stars from Kathleen, pic of abigail for you to never forget how much you meant to her and i wouldn't let you go without you doodie and it was clipped to you with a tigger clip so you wouldn't lose it.

I gave you a kiss so strong, it was enough to last upon you forever, no goodbyes coz this wasn't goodbye you were always gonna be with us deep in our hearts. Paul drove us to church, we carried  you in the back of the car with us as you lay in your angel white bed. All family and friends walked behind us to the church. We cried the whole way to church, your dad was such a great support even tho he was devestated. The church was jammers, for a christmas eve and a baby of just 5 1/2 mths you sure did draw a crowd... a stylish farewell ;-)

Mass was beautiful, perfect in everyway, Mag & Gay sang beautifully. During the whole funeral mass i was completly distracted by a robin flying high over the alter, he actively flew up and down the window and across the alter high up from window to window. A robin had sat at my back kitchen window last week and hearing so many stories of how robins are related to death, it was kind of comforting as if you were giving us a sign that things will be ok and your safe and healthy now. Make ya wonder???

Mass ended and we brought you to your place of buriel with my nan & grandad. Your grandad ollie carried you up the aisle, however he managed i don't know, maybe you helped him through it. Grandad kelly took over, followed by Liam, Glenn, Dotty, Martin, Paul and finally your dad took you in his arms for the final steps, the last hurdle. The buriel was deeply upsetting for all of us, unexpectidly uour big sis abigail took an awful shock and went into hysterics when your angel bed was lowered into the ground. It was heartbreaking listening to her cry out for you, absolutely heartbreaking. I explained that down the big scary hole was a tunnel and thomas the tank engiene was waiting down there to bring you through the tunnel and up to heaven in time for santa to arrive. Don't ask me where this idea came from but it just came to me! She calmed down soon afterwards.

During mass, Paul did a reading, Kim & Liam prayers of the faithful, nanny's brough up gifts, ro ro & shirley brought a pic of your smile and your liverpool jersey and runners, glenn & maggie brought up your xmas cards and your musical mobile pooh, abigail brought up your bubble, Luke read the offortury and Teresa read the communion reflection i put together. Ollie (good in thoughts again) rushed us home so diggers could fill in the grave! Imealda dropped in xmas deserts and cake for the after service. Tina & Ray had a beautiful spread on of sandwiches i think chicken and sausages and soup.

I went upstairs to gather my thoughts, the rustle and bustle of downstairs made me realiase life must move on, time cannot stand still and time cannot move backwards unfortunately... I wished the world could just stand still or time move back so we could relive all those happy memories once again and treasure them even more that we had done. Little by little ppl left our house and then there was 3... me your dad & abigail.... not 3 tho 4 coz it'll always be 4 well for now anyway, maybe in time you'll have a little brother or sister. But for now it'll always be 4, the 3 of us and you in each of our hearts.

Being on our own was short lived, mammy & sarah came to help us prepare for 2moros dinner. Dotty came and Laura was in from next door all showing great support as always. Rosaleen, Luke, Maggie, Johnny & Kathleen came to help us lay abigail's presents out and leave room for santa to leave his presents down for her. The room was jam packed, she was gonna be a busy girl in d morning.

We then went off to bed, what would be our 1st night without you here, knowing you'd never be 'here' physically again...

1 day left...

23rd December '09

Walking up with you inbetween us was so special, just like auld times eh? During the the rosery last night i felt this warmth right up my back, it lingered for ages then i felt my insides freezing cold. A short while later yer dad got a simiular feeling. It was like you were letting us feel your pressence.

We laid you out i your room today, the sitting room was just too warm. i sat downstairs for a while this morning arranging readings, prayers, the offortury and the reflection. I dont know how but somehow i got the strength to write the communion reflection. You had so many visitors 2day, loads of family & friends came to help out, make tea and food for ppl coming and going. I made an album of all your great memories you gave us and eventually got round to filling all those empty photo frames and albums...

We took it in turns to sit with you and chat. In the back of my mind all day i was in denial of what reality was. i kept so busy i didn't have to think about what was happening. The Lourdes Fund called to sympathise and say that a spot remains open for me to go to Lourdes because they had decided to send me and you at the last meeting. The Carbury Carers sent in a chq to cover food and refreshments for the few days. Ppl were just soooooo nice. Ray & Tina and neighbours and friends brought food and drink, ppl could not do enough to show they cared.

Pat Ryan came to say the rosery again. We brought you downstairs for the rosery, how handsome you looked for everybody, handsome georgeous lil man how could this be happening?

We laid you in your room 2nite and put the camera monitor on to keep an eye on you throughout the night. Tomorrow we face the hardest day of our lives yet... saying farewell to our beautiful handsome lil man xox

Bringing you home:

22nd December '09

I woke up thinking i had just had the worst nightmare ever, reality soon set in. Brought Abigail down to give yer preschool teachers der xmas presents. We hen went to see Patrick Larkin funeral director to put plans in place. I got photos onto a disc and left them with Sheila to print. Laura did my hair and then i got a telephone call from Kathleen to say you were ready to come home. Your grandad Ollie took us to pick you up almost killing us coming off the enfield road onto the motorway. Close call...

Teresa met us up there and both nanny's came. I brought up one of your xmas outfits to get you kitted out in and a grandfather hat. As we entered the mortury omg it was painful seeing you just lying there, alone and cold. The man in charge dressed you in your clothes and the chaplin said a few paryers. Kathleen and some nurse from St Teresa's Ward came for the few prayers. How handsome you looked in your xmas clothes, so so handsome.

We brought your moses basket to the hospital to bring you home in, teresa brough nanny kelly home and we sat you in the back with your dad and i the whole way home. I then lifted you and carried you into the house where family and friends waited for us. We let as many ppl as possible hold you before we help you in our arms for the rest of the night. The rosery was @ 9pm, abigail was in bed before it all started coz all that amount of ppl would just confuse her. When she seen you, her first words was "Whens is he gonna wake up"

Huge ppl gathered for the rosery, so many ppl got to know you in your 5 & 1/2 mths of life, you got so many places, you really lived your life to the fullest. Abigail is gonna miss you terribly, she gave you losts of hugs n kisses, she just expects you to wake up, as do we all. We laid you in your moses basket and put you inbetween us for the night. It was so nice having you so close to us. Both your dad and i managed sleep tonight, think coz u were with us in body and mind.

EVERY PARENTS WORST NIGHTMARE

21st December '09

Daddy arrived in shortly after 8am from a long nights work, i was up at around 6.30 with you. We were playing with you loads, Dr Scree (Dr Quinns reg) came in with his colleague and said you were 2nd down on the list and should be due to theatre at approximately 10-10.30. you were put on fluids at about 6am with yer last feed been at about 3am this morning! Felt so bad for you, you love yer food and here we were fasting you and you starving poor lil man, not fair eh??? Despite the huger you were full of beans, your dad and i were playing peek a boo, and tickling games and getting you toys to keep you amused, you were havin great fun.

Your nurse came to inform us plans had changed for theatre and you wouldn't be goin down til 12pm... I was furious, your only 5 1/2 mths, fasting since 3am and it was so unfair, what could be the delay, today was just emergency cases. No docs came to let us know of the delay either which was annoying. I went off to the bank and gave u and yer dad some dad to son time :-) i was only a 1/2 hr gone when i came back your dad had a snooze while i gowned you up for theatre. When yer dad woke we played with you loads, you were so clever figuring out where i'd pop out from while we were playing peek a boo :-) We got loads of giggles outta you despite 9hrs fasting. 

At 1pm they called you down to theatre and about time too, poor lil man you've enough to be dealing with without unxplained dealys. Before theatre they did all their usual checks. One doc queryed why a specific cross bloods wasn't done, another agreed they'd do it once they got you on the table. i gowned up and brought you down with the nurse, this was my 5th time to bring you in for ansthesia, twice in cath lab, twice for stent procedures and now today. Dr Scree's colleague tried and failed to contact Dr Quinn to check if ansthesia could be administered.

The anethetist rang Dr Quinn on her mobile and when she came off the phone she said "Dr Quinn said to go ahead with the induction, he'll be here soon". The put you asleep, i gave you a kiss and handed you over to doc's. Fergal had still not arrived when i was leaving!

Your dad & i went to the canteen to get lunch, it should only take an hr or so, so we didn't bother leaving the hospital. On the way to the canteen we met laods of celebrities, there were all doin the ward walks for the lead up to xmas. Present was PJ Gallagher, Mickey Joe Heart, Mikey Graham, Glenda Gilsonen, Rosanna Davison, Keith Barry and many more. We got chatting PJ Gallagher and your dad took a pic of me & him, aghhhh! Think yer dad was hoping i'd say hop in there with Glenda but i was like no chance a sniff of her and it's good luck me... lol! We went to have lunch, met Kathleen our CNS and had a chat with her bout you. My uncle is good friends with John Hogan, country musician who had been chatting Daniel O'D earlier today, so he asked John could he give me a call to wish you well... and so came the call from the wee donegal man ;-) bet yer nanny kate & marie would be raging...

Just before 2pm came a frightening call from theatre, i couldn't really make them out, front canteen door was locked so i'd to go out the side door levaing your dad alone not knowing who was on the phone to me. The only word i can remember really is "can you come immediately". I ran as fast as i could to the stairs and belted up 2 flights to theatre, where i think a doctor let me in with his badge, can't even remember wot was goin through my mind, there was that many thought and sceanrios getting from canteen to theatre was a blurr. Waited patiently outside theatre where i began to cry my eyes out wondering what was wrong. Fergal (kidney surgeon) came out, eyes full of worry and sadness, i kept thinking this cannot be happening over and over. Fergal sat with another nurse beside me "are you on your own" i just asked him wot was wrong where he explained how you had met major complications and you were deteriorating. With that Colin McMahon (cardiologist) rushed by me trailing my call out to him.

My heart sank, you dad phoned where i told him to come quick. He arrived and we both sobbed out heart out as we awaited news on you... Fergal told us your heart stopped and somehow this didn't phase me because i had heard of loads of babies pulling through cardic arrest. 2 Cariologist were with you and Lars (heart surgeon) was down the hall. I asked how were you on a scale of 1-10, 10 being the worst and he said 8-9. I could not believe that over an hour ago i held you in my arms and kissed you goodbye as they put you sleep now you were in theatre fighting for your life. 2 nurses came with clothes, almost in tears as they passed us.

Docs brought us through to theatre, into what looked like ICU and into a conference room. Confused as to why we were being brought in here.Colin, Kathleen, Fergal & another woman sat around the table in the confererce room. your dad and i sat opposite them. Colin began explaining what happened, most of which just went over our heads, into the conversation realisation sat in that our worst nightmare was about to happen. When Colin spoke those dreaded words, every parent wishes they'd never hear. "I'm sorry but Billy passed away", your dad and i were inconsolable, i kept saying over and over again, "please tell me this is not happening, please tell me this is a dream"

In theatre i had been thinking we'll be in for xmas day but it's not so bad, we can skype your dad & abigail and we can see the experience through wireless internet. Sure xmas day is bouring anyway and sure now it'll give ppl an excuse to have something to do and come visit you. I'd created our whole day. This could not be happening, it really could not. You were thriving, gaining weight, meeting all your milestones, keeping reasonably well healthwise, smiling, giggling and playing with us just hrs ago. How is it that we're never gonna see you smile again, see that surious look on yer face when we play peek a boo or try figure out who's Ro Ro and who's Maggie, never see you demolish spuds or your favourite melon desert, never see those beautiful beaming lovable eyes, never hear that infectious giggle, never feel the warmth of your cuddles. Total devestation, what are we gonna do without you. Nightmare was now reality.

That curious look, just hrs before your scheduled op:
After a short while without a word to us, Fergal excused himself from the conference room. Colin and Kathleen were in shock, Colin couldn't understand, your death was so unexpected, a complete shock, your body should have tolerated this. You didn't even get operated on, not likely an anesthesia reaction b'coz they happen within 10-12 of induction and this was 30mins later. We were informed the coroner would have to be informed and a post mortum take place due to unxplained death.

We were left alone, i txt teresa and asked her to come immediately, she only worked down the road didn't telll her why. On of the nurse's rang your nanny kelly to explain you had met complications. I made a decision to ring both your nanny's, paul & shirley. It was the most horiffic thing i've had to do and to do over the phone was cruel but i didn't want word spreading before family knew. I could feel their pain in the phone calls, complete shock and devestation.

Kathleen took us back to St Teresa's ward where you were laid, to say we were in sock was an understatement, a tube was down your throat and plaster around your mouth, you just looked induced, asleep waiting to be woken, still warm and cuddly. This was the most cruelest act that God has put upon us, this was not your time, you gave so much to us and yet still had so much still to give, totally unfair. Teresa arrived where i delivered the devestating news, paul, trish, nanny kate & tina & luke, all came to see you. Luke couldn't bear to stay so he left.

The pathologist arrived to give details of the post mortum, it is likely that we could take you home 2moro. It is portocol that we identify your body to two guards for the coroners report. This was very upsetting, it was as if we had done something wrong to you. After a short while we took you down to the mortury and and said our goodbyes til morning. Paul drove our car home and Trsih drove your nanny's home, Teresa went home on her own. As i sat in the back of our car, i cried my eyes out the whole way home, repeatidly telling myself this was not happening.

When we got home Maggie, Johnny, Daddy & Glen were waiting for us. Liam, Sheila & Kathleen came then. Just before we headed to bed Rosaleen & Luke came. Your dad didn't sleep much as he was very upset, i was equally upset but i think exhaustion took over my body and gave me a rest. My last thought goin to bed was "please let all this be a very bad dream", no such luck!

Billy below just hrs pre-op...